On Tuesday Keri, from Oklahoma, USA, posted a bitter-sweet family photograph to her Instagram page holding her newborn baby while husband Royce and their son smile next to her hospital bed.
The mum wrote: "We said hello and goodbye to our sweet Eva yesterday. She was so perfect in her own little way. I'll be sharing more about her incredible story later."
Keri and Royce Young attended their ultrasound scan in December 2016 and were told their baby had the rare condition anencephaly, meaning she had no brain and would never develop one. The devastated couple made the brave decision to continue with the pregnancy - fully aware their baby would only live anywhere between five minutes and 36 hours - so that her organs could be harvested, saying it was the decision they would 'regret the least'.
In a heartbreaking interview with Good Morning America in February, Keri and Royce told how their baby was "already dead" when they found out she was terminal.
Her father shared how when he was told her condition was terminal, she was "already dead."
Royce said: "We look forward to holding her, kissing her, talking to her, telling her about her brother. And to think that that might have to be done in five minutes is really hard.
"You can make plans and you can prepare yourself, but once we kiss her and say goodbye she's gone - it is final.
"My daughter's got a bigger purpose in life. I don't get to brag about how pretty her hair is. I won't get to tell people how good grades she made. I get to tell them about what she's doing with her life."
The couple had chosen the name Eva during their pregnancy as it means 'giver of life'.
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